Data Collection

MNDS Minimal Neonatal Dataset
Range: 22 - 32 weeks GA or 400 - 1500g BW
Most appropriate age: primary hospitalization
Centers: all Level III and IIb units

Data Form  


MNDS IIB CPAP 
Range: >32 weeks GA and >1500g BW
Most appropriate age: primary hospitalization
Centers: Level IIb units

Data Form


Asphyxia Registry 
Range: all GA and BW
Most appropriate age: primary hospitalization
Centers: Level III units

Data Form


Follow-up at 9-12 months corrected 
Range: 7-14 months
Most appropriate age: 9 months
Centers: Berne, Biel and Zurich only

Data Form 


Follow-up at 18-24 months corrected 
Range: 15-29 months
Most appropriate age: 24 months
Centers: all centers, all infants according to list of missing infants

Data Form 


Follow-up at 3-3.5 years
Range: 30-45 months
Most appropriate age: 36 months
Centers: Berne and Biel only

Data Form 


Follow-up at 5.5-6 years
Range: 4.5-6.5 years
Most appropriate age: 5.5 years
Centers: all centers, all infants according to list of missing infants

Data Form 


Parent questionnaire 
Range: 4.5-12 years
Most appropriate age: 5.5 years
If parents refuse FU5

Data Form 


SDQ questionnaire 
Range: 4.5-12 years
Most appropriate age: 5.5 years
Optional addition to FU5

Data Form 


Content of routine follow-up assessments

At 18-24 months
Bayley II PDI, MDI (Bayley III for children born as of 2012), neurological exam, CP, gross motor function, visual exam (incl. Lang test), hearing exam

At 5-6 years
K-ABC II, neurological exam, CP, Zürcher Neuromotorik, visual exam, hearing exam

Follow-up Guidelines (PDF)  


Unit Survey

Annual collection of details on infrastructure, staff, admissions, processes, quality and training/teaching supervised by the Committee for the Accreditation of Neonatology Units (CANU).

Unit Survey 

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